Our mission is to increase awareness, provide support and help find solutions in moving forward for those affected by Rare Diseases or Disorders such as Syringomyelia, Chiari Malformation and more.

Carion Fenn Foundation is a registered charity established to promote health by providing support services and resources for chronic disease management, while educating the public and those suffering with Syringomyelia and Chiari malformation about rare diseases. Our programs include a Monthly Support Group Meeting, Mental Health Symposium, Mental Health Forum, Health Expo, Durham Mental Health Day at Queens Park and our 24 hours online support.